Our very dear son has died

Matthew was courageous both in life and death.

He was his usual bright and intelligent self until summer 2016 - but he no longer wrote on his blog as his tiredness was increasing

His final journey began at the beginning of July 2016. He spent 4 months in hospital and then came home to die at the end of October. He was on APD dialysis and was completely bed ridden; had lost his sight and most of his hearing. He was kind and loving and never complained.

He died on November 5th 2016 with us beside him. We are devastated but glad he is now at peace.

We will love you for ever Matthew xxx